Jon is already feeling much better and his scan was clear. Also his bloodwork was great. PTL!
I remembered what I was going to write about Emma Kate. One night I was putting the babes to bed. The routine is I put both of them on my lap and rock and tell them a story. When the story is finished, Emma Kate jumps off and gets in bed by herself and covers herself up. I then rock Ryan to sleep. They are usually asleep within 10 minutes. This particular night, Emma Kate jumped in bed, covered herself up and said, "When is Jesus coming to get us and take us to heaven?" So I told her it wasn't time yet. She said, "but I really want to go. How will we get there?" I told her that it wasn't our bodies that go to heaven, but our spirits and that we would get new bodies. Well, that got her attention. That led into a discussion about whether we would have eyes, noses, ears, etc. It was just such a sweet conversation. Oh to have childlike faith. My children say often they WANT to go to heaven. Emma Kate just has 2 request, that she can take her Tianna dress and her water bottle in case she gets thirsty. So precious!
Tonight Jon and I were putting Luke down and Jon mentioned to me that Luke does not play with his Monsters University thing anymore because he is missing a piece. Luke said, "Oh, I just want to play with it one more time before I go to heaven--but Oh, I really want to go to heaven! I really hope we have our eyes because I really want to see the streets of gold."
Oh My Gosh! After these 2 conversations I just want to melt. The HOPE that they have in Jesus at this young age is amazing! They WANT to go to heaven and meet Jesus! They make my faith and trust stronger!
One last thing. I have mentioned before that Luke does a quiet time at night. He is really trying to learn from the Bible and put it into practice. He has been struggling with telling the truth lately. So I told him today I was proud of him because he made the right choice in telling the truth. He said "I'm trying really hard to be sweet and tell the truth, but sometimes it is really HARD." What a great opportunity to talk about the fact that YES, it can be hard but if we keep in God's Word and ask Him to help us, we can do it. But we will have moments of failure. We have to pick back up, ask for forgiveness and keep going. Love, Love these teachable moments. I learn SO much from my kids! LOVE THEM!
Strebe's are:
GODSTRONG!
Monday, February 24, 2014
Sunday, February 23, 2014
This and That
2 funny stories I left out of the IOH trip:
1. I lost my voice during the trip--completely lost my voice. I could only whisper. Ironically, that night IOH sends each couple on a date. Normally I would be super excited about that, but in this instance not so much. I'm getting ready thinking what the heck are we going to do tonight--Jon can't hear and I can only whisper. This should be a lot of fun. So we went off on our date and again, ironically, we were at a sports bar. TV's were blaring above us (Jon really can't hear when there is background noise). Needless to say we didn't talk much, Jon read lips a lot and we had a great time regardless! Both of us love to eat and the whole meal was taken care of--we could literally order whatever we wanted. The date was amazing!
2. The last day we were there we were set to go to Sea World. The plan was to head home straight from Sea World. Because we had 2 cars in Orlando (read my previous post), we didn't quite know what to do because we are very frugal and did not want to pay for 2 cars to park at Sea World. So Jon finds a Walgreens near the entrance and we park his car there. At the end of the day, we head back to Walgreens. His car is NOT there! Initally I thought it got towed, but Jon went and ask the manager and he said they do not tow cars. It hit us, the car had been STOLEN!! We sat there and wondered what in the world we were going to do. On a side note, I was worried about how we would recover this car that is probably worth $8k but not replaceable. Jon was only worried about our clothes that were in there and my new Nike shoes!! LOL. As we sat there, Jon said something just isn't right. Maybe we are at the WRONG Walgreens! YEP! We were! We found the car at the Walgreens 1 mile down the road! You can't make this stuff up!
Our last activity we looked forward to for months:
During high dose chemo in Indianapolis, we planned several things we would have to look forward to when it was all over. One was the IOH retreat. Check. One was the Duke game. Check. And the last was the Disney Live Tour featuring Sophia and Jake. Something for every child to enjoy. So this past Thursday we suprised the kids and took them to Charleston to watch the Disney Live on Stage Tour. Check. It was bitter sweet. Now we can move on with our lives.
The family sickness:
We are all getting better. Luke, Ryan and I are completely better. Emma Kate still has a bad cough but is acting fine. Jon on the other hand was getting worse last week. He was running a low grade fever at night, migraine headaches everyday, extreme fatigue, cough, congestion, and on Thursday pushed the stroller from the collesium to the car and was so out of breath I couldn't believe it. I put my foot down and made a doctor's appointment. By the way, he worked during this time of feeling awful. So we went on Friday afternoon and the doctor really believes that it is bronchitis. He put him on an antibiotic, but because of his history sent him for a chest x-ray and did some bloodwork. We have also been in touch with Jon's oncologist and he wasn't overly concerned but agreed additional testing needed to be done. We know this is in God's hand but it is during these times, we start having fear creep up. We feel confident that all it is is bronchitis because this antibiotic has kicked in and Jon is already starting to feel much better. Praise God. But we always get anxious finding out the results of the tests. Pray as we wait to get word of the results.
Some great teaching moments:
1. The kids got some candy for Valentine's Day. I am not a big candy/sugar person. We try to limit it. So when the kids get it, it's a treat. They each got a bag with some hershey kisses in it. They carried around their bags for days. I never thought a thing about it. One day I remember seeing Luke with something in his mouth but honestly things started happening and I forgot about it. The next day I saw him open the pantry, grab something and run to the bonus room. I decided to see how it would play out. When he came back down I asked him to open his mouth. He was thoroughly embarrassed that transitioned into bawling. He was caught. He not only had eaten all of the kisses from his bag but had moved to eating the kisses in the big leftover bag. Luke is our rule follower so for this to happen was unusual. But what a great teaching moment. He is very sensitive to the Lord and to what is right so he obviously felt bad. Jon had a good talk with him and all is good. By the way, Luke does a quiet time every night and he said the other day, "Momma I have been learning in my quiet time how to be sweet so when I wake up I'm really trying to be sweet." I'm telling you, God has some great plans for that boy. I feel so humbled and inadequate to be his mother! Just for fun, here is the evidence of the stolen candy. This is looking straight in the bag. See all the hershey kisses papers? And he also had eaten a small bag of M&M's.
2. I can't remember the next teaching moment. LOL. It was something with Emma Kate. It's 9pm and my brain shuts off.
One last Inheritance of Hope story:
On the retreat a 23 year old man attended with his girlfriend. He has been battling testicular cancer, had high dose chemo at the same time as Jon at IU Cancer Center, but unfortunately not a favorable outcome. They are trying a different chemo right now. I read on his Facebook he recently accepted Jesus as his Lord and Savior. And he ran off that day and marriend Montana. Congrats to this great couple. And this is affirmation once again that IOH is such a superb organization. I know for a fact that seeds were planted that week. IOH--you are such a blessing to so many!! Please continue to pray for Jaron and complete healing in his body!
The Strebe's remain:
GODSTRONG!
Wednesday, February 12, 2014
"You can't make this stuff up"
After I wrote the previous blog, Jon started getting pretty sick. Luke followed soon after. I knew that it was possible Luke still had an ear infection so I thought he was running a low grade fever from that. Wasn't sure what to think of why Jon was sick, running fever, chills, aches, etc. Well, 5 days into it, the babies started running 103/104 fevers. They were very sick. It all of a sudden clicked. This WAS a separate sickness than what we had, and it could be the flu! So I took the babes to the doc and sure enough--they tested positive for the flu!!! So the following evening I came down with the dreaded flu symptoms!! So I'm also on tamiflu, along with the babes. Fun times. We have now been sick for 17 days. Luke has been fever free for 24 hours so pray that all of us will get well!
Also after I wrote my last entry, one of the ladies we were on the retreat with passed away. She died 6 days after we left. Although we were very sad to hear the news, we rejoice that she is in heaven. Her and her husband are strong believers and although I only had one short coversation with her, I was able to be in a group with her husband and gain insight into their lives. Great couple! Please pray for Jim and his children. I am even more grateful for Inheritance of Hope. How great that they were able to give them one lasting memory together as a family, especially for the children. And also that she was able to make a legacy video for her children. What a wonderful organization!
I love the month of February! What a great reason to celebrate LOVE. Love for our family, friends and most of all Jesus Christ. I love waking up every morning and giving each of our children a heart that has on it something we love about them. I love making everything in hearts and red/pink on Valentine's Day. I know some of you do not like Valentine's Day. Well, I like it so much we celebrate everyday of the month of February! :o) (Maybe it's because I was born this month). This is the verse that comes to mind.
I Corinthians 13
Also after I wrote my last entry, one of the ladies we were on the retreat with passed away. She died 6 days after we left. Although we were very sad to hear the news, we rejoice that she is in heaven. Her and her husband are strong believers and although I only had one short coversation with her, I was able to be in a group with her husband and gain insight into their lives. Great couple! Please pray for Jim and his children. I am even more grateful for Inheritance of Hope. How great that they were able to give them one lasting memory together as a family, especially for the children. And also that she was able to make a legacy video for her children. What a wonderful organization!
I love the month of February! What a great reason to celebrate LOVE. Love for our family, friends and most of all Jesus Christ. I love waking up every morning and giving each of our children a heart that has on it something we love about them. I love making everything in hearts and red/pink on Valentine's Day. I know some of you do not like Valentine's Day. Well, I like it so much we celebrate everyday of the month of February! :o) (Maybe it's because I was born this month). This is the verse that comes to mind.
I Corinthians 13
13 If I speak in the tongues[a] of men or of angels, but do not have love, I am only a resounding gong or a clanging cymbal. 2 If I have the gift of prophecy and can fathom all mysteries and all knowledge,and if I have a faith that can move mountains, but do not have love, I am nothing. 3 If I give all I possess to the poor and give over my body to hardship that I may boast,[b] but do not have love, I gain nothing.
4 Love is patient, love is kind. It does not envy, it does not boast, it is not proud. 5 It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. 6 Love does not delight in evil but rejoices with the truth. 7 It always protects, always trusts, always hopes, always perseveres.
8 Love never fails. But where there are prophecies, they will cease; where there are tongues, they will be stilled; where there is knowledge, it will pass away. 9 For we know in part and we prophesy in part, 10 but when completeness comes, what is in part disappears. 11 When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put the ways of childhood behind me. 12 For now we see only a reflection as in a mirror; then we shall see face to face. Now I know in part; then I shall know fully, even as I am fully known.
13 And now these three remain: faith, hope and love. But the greatest of these is love.
The Strebe's stay
GODSTRONG
Thursday, February 6, 2014
Inheritance of Hope/The Strebe's new motto
Jeremiah 29:11
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you HOPE and a future."
This past weekend we had the priviledge of attending a Legacy Retreat with an organization called Inheritance of Hope. Their mission is to inspire hope in young families facing the loss of a parent. Inheritance of Hope is a faith based organization.
I'm going to rewind our lives a little. Back in September 2013, when we first arrived at Indiana University Medical Center and Jon started his high dose chemo with stem cell transplant, a nurse approached us about applying for an all expense paid retreat to either New York City or Disney World in Orlando. She told us it was for families facing a life threatening illness and we qualified. Of course it hit me like a ton of bricks. Jon was facing a life-threatening illness and our family would qualify to apply. I started bawling. Jon, on the other hand, said APPLY! It's a free trip to Disney! So, being the submissive wife I am (HA!), I filled out the paperwork. It was only a few weeks later that I got a reply from Inheritance of Hope and we had been accepted! It definitely gave Jon something to look forward to as he faced a very grueling schedule of high dose chemo. We decided on the February trip to Disney. We originally thought Jon would still be on oral chemo during the time so we were a little hesitant.
So we just put this in our back pocket and remembered that we would have something to look forward to after Indy, surgery and check ups.
Strebe's new motto: "You can't make this stuff up"
Let me preface this by saying prior to going to Orlando, Jon and Luke ran fevers and had bad congestion and Luke had thrown up one night. Ryan had run a fever and had just started the congestion. We were passing a sickness around but the kids had been pretty good the day before we left.
Being the adventurous person and mom that I am, I decided to take the kids by myself down to Disney early on Thursday and have some fun before the retreat officially started on Saturday. We left on Thursday morning, and the trip went great! (Ironically I haven't travelled alone with them since they were babies). We got down to Disney about 3pm. We checked into our hotel room and got settled. I wanted to get the kids to bed early that night so we headed to Chik-fil-A around 5. The kids played on the playground and attempted to eat their dinner. About 5:30 Luke started complaining of his ear "popping" and Ryan had gunk just flowing out of his eyes from the cold the boys had. I gave Luke tylenol thinking if it was pain that would settle it. I realized they were all tired so took them back to the hotel. By the time we got back I realized Emma Kate had a 102 fever and Luke was in so much pain he was bawling. He would sleep for 30 minutes and wake up just crying SO bad which is extremely abnormal for him. At this point I'm completely kicking myself for coming by myself. I'm thinking we could have just come with Jon after work on Friday like we had originally planned! So I get the babies to sleep and call Jon. Part of me said they will be fine in the morning and we will move on with our day at Disney. The other part of me said if things go south and I'm here by myself I'm in big trouble tomorrow. After Jon and I talked we decided he better get in the car and come down (as if he hasn't missed enough work). I felt TERRIBLE. He got to our hotel at 2am and entered to find Ryan crying because his eyes were stuck together from all the gunk. Luke had settled by now because I gave him a second dose of Tylenol.
So the next day it was COLD and RAINY. Miserable day. We went to ride the monorail that was not operating. We then went to a fun restaurant and while we were there Luke was going downhill fast. He had not eaten for a couple of days and he was just miserable. We decide that we must take him to an Urgent Care. We found one right around the corner from where we were staying but we get there and it is a complete hole in the wall (Jon called it trailer trash because part of it was a trailer). So I kept searching on my phone and found a pediatric one in a nearby nice town. We went there and waited for it to open at 4pm. We were first in line! They check Luke out pretty quickly and I was very impressed with the doctor. He diagnosed him with pneumonia and double ear infection. He put him on antibiotics and ordered us to do his breathing treatments every 4-6 hours (his asthma plays into all this). We leave and he goes downhill even more. Spikes a 102 fever, sleeps 14 hours. I was very worried about him. He was one sick boy! Saturday we took it easy so that Luke and Emma Kate could begin feeling better.
Our conference started on Saturday night where we met with other couples with life threatening diseases. The kids were taken care of by volunteers. All 3 of our kids were together in the "fun" room. Luke had started feeling a bit better by this point. Jon and I were in a group where we all introduced ourselves and briefly told our story. These stories are eye opening and sad and heart breaking. And all these people are pretty young (23-55). One 23 year old has testicular cancer, treated at IU at the same time as Jon and his high dose chemo did not work. He is doing clinical trials. A lot of people with brain cancer. A young lady with 3 small children has cancer and had to have her leg amputated. She is also being treated at IU Cancer Center. Some very strong in their faith, some searching for God, some realizing they have walked away from God, some with no faith at all, no belief in God. 16 families from 14 states come together to enjoy a super weakend while having the support of people going through similiar circumstances while Inheritance of Hope volunteers serve each and every family. We didn't have to think of one thing, everything was all done for us. We ended the night with a dinner and we had a guest come knocking on the door! It was Mickey Mouse!! So special!
More drama: Saturday night Emma Kate throws up half the night. Poor girl, it was sad. I was changing beds at 4am because she had thrown up on both beds. I couldn't get to her in time. Jon took care of her from that point forward and it was so cute because they had a little system. Most of you know Jon has lost a lot of hearing and so Emma Kate layed on him and they worked out a deal that everytime she needed to throw up she would tap him on the shoulder (because he couldn't hear her) and he would run with her to the bathroom. I think only one time they didn't make it and it went all over the floor. He was getting up with her every 15-30 minutes.
Jon and Emma Kate slept during our morning session and then we all headed to Magic Kingdom. It was a great day. 2 volunteers, Bobby and Jessica stayed with us the whole day and helped us push strollers, carry children, literally whatever we needed! It was amazing and they were a blessing! The kids fell in love with them and miss them already. We had a great day in the park and stayed until 10:30pm.
Monday we had morning counseling meetings and split up with caregivers in one group and ill people in the other group. IOH does a great job of providing resources and support for everyone. They also provide fun, memories, and legacy opportunities for the participants. We then headed to another fun day at Universal Park with Jessica! We were all GODSTRONG that day. Jon and I even got to ride a roller coaster together. We headed back by 5:30 so that we could have Kids Night Out/Date Night. IOH plans your date for you and takes you there! They also set up a place you can go and make a legacy video for your children. Jon and I made it fun and did NOT cry! Then they provide a counselor to meet with you as a couple to touch base and talk about whatever is on your mind.
Tuesday morning they do a closing ceremony, present the gospel and send you off to Sea World. We got home at 11:30pm Tuesday night.
It was a great encouraging, uplifting relaxing and eye opening experience. We were able to share our faith very openly and share that being GODSTRONG is what has gotten us through this trial. Jon and I were able to share some special things in our groups when we were split up.
If you would like to know more about this organization please visit:
www.inheritanceofhope.org
There is much opportunity. You can become a volunteer. You can become a donor. You can financially support a family to be able to go on this retreat. If you live in the Orlando area you can definitely get involved in many ways. You can also nominate a family that one of the parents has a terminal illness. Check out the website. It is a great organization! I highly recommend you looking around the website and finding out more about Inheritance of Hope. Also go to Inheritance of Hope's Facebook page. Their cover photo is LUKE!!!
Here are a few pictures of the retreat.
Inheritance of Hope and all the staff and volunteers: YOU ARE A BLESSING!! THANK YOU!
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you HOPE and a future."
This past weekend we had the priviledge of attending a Legacy Retreat with an organization called Inheritance of Hope. Their mission is to inspire hope in young families facing the loss of a parent. Inheritance of Hope is a faith based organization.
I'm going to rewind our lives a little. Back in September 2013, when we first arrived at Indiana University Medical Center and Jon started his high dose chemo with stem cell transplant, a nurse approached us about applying for an all expense paid retreat to either New York City or Disney World in Orlando. She told us it was for families facing a life threatening illness and we qualified. Of course it hit me like a ton of bricks. Jon was facing a life-threatening illness and our family would qualify to apply. I started bawling. Jon, on the other hand, said APPLY! It's a free trip to Disney! So, being the submissive wife I am (HA!), I filled out the paperwork. It was only a few weeks later that I got a reply from Inheritance of Hope and we had been accepted! It definitely gave Jon something to look forward to as he faced a very grueling schedule of high dose chemo. We decided on the February trip to Disney. We originally thought Jon would still be on oral chemo during the time so we were a little hesitant.
So we just put this in our back pocket and remembered that we would have something to look forward to after Indy, surgery and check ups.
Strebe's new motto: "You can't make this stuff up"
Let me preface this by saying prior to going to Orlando, Jon and Luke ran fevers and had bad congestion and Luke had thrown up one night. Ryan had run a fever and had just started the congestion. We were passing a sickness around but the kids had been pretty good the day before we left.
Being the adventurous person and mom that I am, I decided to take the kids by myself down to Disney early on Thursday and have some fun before the retreat officially started on Saturday. We left on Thursday morning, and the trip went great! (Ironically I haven't travelled alone with them since they were babies). We got down to Disney about 3pm. We checked into our hotel room and got settled. I wanted to get the kids to bed early that night so we headed to Chik-fil-A around 5. The kids played on the playground and attempted to eat their dinner. About 5:30 Luke started complaining of his ear "popping" and Ryan had gunk just flowing out of his eyes from the cold the boys had. I gave Luke tylenol thinking if it was pain that would settle it. I realized they were all tired so took them back to the hotel. By the time we got back I realized Emma Kate had a 102 fever and Luke was in so much pain he was bawling. He would sleep for 30 minutes and wake up just crying SO bad which is extremely abnormal for him. At this point I'm completely kicking myself for coming by myself. I'm thinking we could have just come with Jon after work on Friday like we had originally planned! So I get the babies to sleep and call Jon. Part of me said they will be fine in the morning and we will move on with our day at Disney. The other part of me said if things go south and I'm here by myself I'm in big trouble tomorrow. After Jon and I talked we decided he better get in the car and come down (as if he hasn't missed enough work). I felt TERRIBLE. He got to our hotel at 2am and entered to find Ryan crying because his eyes were stuck together from all the gunk. Luke had settled by now because I gave him a second dose of Tylenol.
So the next day it was COLD and RAINY. Miserable day. We went to ride the monorail that was not operating. We then went to a fun restaurant and while we were there Luke was going downhill fast. He had not eaten for a couple of days and he was just miserable. We decide that we must take him to an Urgent Care. We found one right around the corner from where we were staying but we get there and it is a complete hole in the wall (Jon called it trailer trash because part of it was a trailer). So I kept searching on my phone and found a pediatric one in a nearby nice town. We went there and waited for it to open at 4pm. We were first in line! They check Luke out pretty quickly and I was very impressed with the doctor. He diagnosed him with pneumonia and double ear infection. He put him on antibiotics and ordered us to do his breathing treatments every 4-6 hours (his asthma plays into all this). We leave and he goes downhill even more. Spikes a 102 fever, sleeps 14 hours. I was very worried about him. He was one sick boy! Saturday we took it easy so that Luke and Emma Kate could begin feeling better.
Our conference started on Saturday night where we met with other couples with life threatening diseases. The kids were taken care of by volunteers. All 3 of our kids were together in the "fun" room. Luke had started feeling a bit better by this point. Jon and I were in a group where we all introduced ourselves and briefly told our story. These stories are eye opening and sad and heart breaking. And all these people are pretty young (23-55). One 23 year old has testicular cancer, treated at IU at the same time as Jon and his high dose chemo did not work. He is doing clinical trials. A lot of people with brain cancer. A young lady with 3 small children has cancer and had to have her leg amputated. She is also being treated at IU Cancer Center. Some very strong in their faith, some searching for God, some realizing they have walked away from God, some with no faith at all, no belief in God. 16 families from 14 states come together to enjoy a super weakend while having the support of people going through similiar circumstances while Inheritance of Hope volunteers serve each and every family. We didn't have to think of one thing, everything was all done for us. We ended the night with a dinner and we had a guest come knocking on the door! It was Mickey Mouse!! So special!
More drama: Saturday night Emma Kate throws up half the night. Poor girl, it was sad. I was changing beds at 4am because she had thrown up on both beds. I couldn't get to her in time. Jon took care of her from that point forward and it was so cute because they had a little system. Most of you know Jon has lost a lot of hearing and so Emma Kate layed on him and they worked out a deal that everytime she needed to throw up she would tap him on the shoulder (because he couldn't hear her) and he would run with her to the bathroom. I think only one time they didn't make it and it went all over the floor. He was getting up with her every 15-30 minutes.
Jon and Emma Kate slept during our morning session and then we all headed to Magic Kingdom. It was a great day. 2 volunteers, Bobby and Jessica stayed with us the whole day and helped us push strollers, carry children, literally whatever we needed! It was amazing and they were a blessing! The kids fell in love with them and miss them already. We had a great day in the park and stayed until 10:30pm.
Monday we had morning counseling meetings and split up with caregivers in one group and ill people in the other group. IOH does a great job of providing resources and support for everyone. They also provide fun, memories, and legacy opportunities for the participants. We then headed to another fun day at Universal Park with Jessica! We were all GODSTRONG that day. Jon and I even got to ride a roller coaster together. We headed back by 5:30 so that we could have Kids Night Out/Date Night. IOH plans your date for you and takes you there! They also set up a place you can go and make a legacy video for your children. Jon and I made it fun and did NOT cry! Then they provide a counselor to meet with you as a couple to touch base and talk about whatever is on your mind.
Tuesday morning they do a closing ceremony, present the gospel and send you off to Sea World. We got home at 11:30pm Tuesday night.
It was a great encouraging, uplifting relaxing and eye opening experience. We were able to share our faith very openly and share that being GODSTRONG is what has gotten us through this trial. Jon and I were able to share some special things in our groups when we were split up.
If you would like to know more about this organization please visit:
www.inheritanceofhope.org
There is much opportunity. You can become a volunteer. You can become a donor. You can financially support a family to be able to go on this retreat. If you live in the Orlando area you can definitely get involved in many ways. You can also nominate a family that one of the parents has a terminal illness. Check out the website. It is a great organization! I highly recommend you looking around the website and finding out more about Inheritance of Hope. Also go to Inheritance of Hope's Facebook page. Their cover photo is LUKE!!!
Here are a few pictures of the retreat.
Inheritance of Hope and all the staff and volunteers: YOU ARE A BLESSING!! THANK YOU!
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