Sunday, September 1, 2013

Quick update

We made it to Louisville, KY.  Everything went great.  We will drive 2 more hours in the morning to Indianapolis.  I have a friend that got some college guys to help us unload.  I will write a longer post when we get there.

God has kept us safe and we are thankful!

Monday, August 26, 2013

T-shirt goal!

When Jon found out he had testicular cancer back in 2006, I bought Lance Armstrong's book, "Its not about the Bike."  For those of you who don't know, Lance Armstrong was diagnosed with testicular cancer more than 15 years ago.  In the book, Armstrong goes into detail about his doctors and treatment.  For us, it was a good read because we could relate in a lot of ways.  But the first time, Jon ended up only having surgery followed by surveillance for 6 1/2 years.  Lance Armstrong's cancer had already spread throughout his body and even to his brain.  So his story was a little different at that point.  The one thing that struck a chord with both Jon and I was how he was so open about his lack of faith and belief in God.

When Jon was diagnosed this past time in December 2012, I read the book again.  I gleaned even more information because at this point Jon was getting chemotherapy.  Although different drugs than Armstrong, we could still relate even more to his story.  Again, his unbelief in God struck me.

Recently I picked up the book again.  I skimmed through the parts that relate to right where we are.  This time we connected with the book perfectly.  When Armstrong describes his journey, we are right there with him!  It gave me the chills to read because he talks about meeting with the doctors at IU Cancer Center.  He describes the day he walked in, and how he felt.  And then how stressed out he was when he left because he had to make a decision on which doctor he would choose.  Again, we could totally relate to his story.  But as I continued reading, again, the way he describes his view of God really stood out to me.  I do not want to bore you but I want to share part of his story.  I am sharing this with you because since the first day I read the book, I told Jon he needed to write him a letter.  I wanted Jon to share his story, his experience, and his belief and trust in God through it all.  Well, of course time went by and we never did it.  When Jon was diagnosed this 2nd time, again, I wanted Jon to write Lance Armstrong a letter but it's been a little crazy since.  Since Jon is now dealing with this recurrence, he IS going to write him a letter this week before we leave.  Jon is going to share his story with Armstrong and the relationship he has with a God that cares so much about every detail of our lives.  A God that can change us!   Please pray as Jon writes and sends this letter.  We have no idea what kind of people Armstrong surrounds himself with.  Maybe he has never heard the TRUTH.  Pray that it will get in the right hands and ultimately that Lance Armstrong will read it.

Here is an excerpt from "It's not about the Bike"  Lance Armstrong:

     I asked myself what I believed.  I had never prayed a lot.  I hoped hard, I wished hard, but I didn't pray.  I had developed a certain distrust of organized religion growing up, but I felt I had the capacity to be a spiritual person, and to hold some fervent beliefs.  Quite simply, I believed I had a responsibility to be a good person, and that meant fair, honest, hardworking, and honorable.  If I did that, if I was good to my family, true to my friends, if I gave back to my community or to some cause, if I wasn't a liar, a cheat, or a theif, then I believed that should be enough.  At the end of the day, if there was indeed some Body or presence standing there to judge me, I hoped I would be judged on whether I had lived a true life, not on whether I believed in a certain book, or whether I'd been baptized.  If there was indeed a God at the end of my days, I hoped he didn't say, "But you were never a Christian, so you're going the other way from heaven."  If so, I was going to reply, "You know what? You're right.  Fine."
     I believed, too in the doctors and the medicine and the surgeries--I believed in that, I believed in them.  A person like Dr. Einhorn, that's someone to believe in.  I thought, a person with the mind to develop an experimental treatment 20 years ago that now could save my life.  I believed in the hard currency of his intelligence and his research.
     Beyond that, I had no idea where to draw the line between spiritual belief and science.  But I knew this much:  I believed in belief, for its own shining sake.  To believe in the face of utter hopelessness, every article of evidence to the contrary, to ignore apparent catastrophe -- what other choice was there?  We do it every day, I realized.  We are so much stronger than we imagine, and belief is one of the most valiant and long-lived human characteristics.  To believe, when all along we humans know that nothing can cure the briefness of this life, that there is no remedy for our basic mortality, that is a form of bravery.
     To continue believing in yourself, believing in the doctors, believing in the treatment, believing in whatever I chose to believe in, that was the most important thing, I decided.  It had to be.
     Without belief, we would be left with nothing but an overwhelming doom, every single day.  And it will beat you.  I didn't fully see, until the cancer, how we fight every day against the creeping negatives of the world, how we struggle daily against the slow lapping of  cynicism.  Dispiritedness millennium doomsday.  I knew now why people fear cancer:  because it is a slow and inevitable death, it is the very definition of cynicism and loss of spirit.
     So, I believed.

Let me close with this.  I have a personal goal and it has NOTHING to do with money.  I could care less about the money.  I would love to see 1,000 GODSTRONG shirts sold.  Jon already is blown away at the people supporting and praying for him.  I would love to tell him that 1,000 people around the country are standing with him in prayer for healing in his body.  I need your help to get the word out!  Please post on your Facebook, send email, send it out on twitter, however you can help me.  I know I'm setting my goals high but how awesome for that many people to be standing GODSTRONG with Jon!  Thanks so much for your support already!

ORDER A T-SHIRT


Sunday, August 25, 2013

Favor

I am not usually one to ask for favors.  But I need your help!  I would like for you all to shower Jon with cards, letters, and care packages (that include something he can DO).

His address will be (beginning September 1st until mid November)

Canal Square Apartments
359 N. West Street
Apt. #282
Indianapolis, IN 46202

Here is the story behind this idea:

I posted something on Craigslist one day selling stuff for boy/girl twins being born this summer.  I wanted all my cute stuff to go to someone special and not just to the Goodwill pile.  A girl emailed me back and said she was interested in buying them.  I was to text her or email her back.  So being the person I am who doesn't think through things before I do them,  I emailed and texted her.  About 15 minutes after I did that, I started freaking out.  I was thinking O My Gosh, what if this is not a girl named Brittany, what if it's the Craigslist killer.  This is of course after I invited her to my house.  So immediately I started stalking her on line.  I was checking all social media outlets, googling her, any route I could find.  When I googled her name, up came an article from Hilton Head that had been written a couple of years before.  It was about a guy named Ben (her husband) was battling cancer for the 3rd time.  A foundation was raising money for this couple because he had already been treated at MD Anderson, and was undergoing a stem cell transplant at Emory University in Atlanta.  I was thinking OMG, if this is the same girl this is just crazy.  Well, to make a long story longer (HAHA) it was the same craigslist girl!  She was now pregnant with twins, due in early fall and her husband was a 3 time cancer survivor.

Well, in the last few months, they have become great friends to us!  It ends up they are strong believers and actually go to our church.  Our paths would have never probably crossed at church or the community so God had it for us to meet them on craigslist!  Now, please understand that at the time we met them in April, Jon had NO idea he was faced with stem cell transplant.  We do not personally know anyone who has undergone this type of treatment.  The fact that God put them in our lives at this very time is completely amazing and a total God thing!  Because they now have twins (a boy and a girl) and Jon is going through high dose.  They are such Godly people and I love hearing what God has done in their lives through Ben's cancer.  And he is such an encouragement for Jon and someone Jon can talk with and he knows EXACTLY where Jon is!  It's truly amazing.

So, in talking to them recently this is some advice that they gave to us as Jon faces some very intense months of treatment.  One thing is they said for Jon to have something to look forward to at the end of this journey.  I'm working on that piece.  And another piece of advice is just for Jon to feel loved and encouraged during this time. Also, to keep his mind active and alert.  So this is the favor:

I am asking that if God lays it on your heart, to shower Jon with cards, letters, care packages, etc. Get creative in what to send him.  I would love to see him receive something everyday for the 2 - 3 months he is there.  Unfortunately, the reality of his situation is that it is easy to get stale mentally, to get depressed, and just in general to deterioate.  I would love for him to have something everyday to read or do.  Jon will start out as outpatient.  He will be admitted if the doctors feel it is necessary.  Otherwise, he will come home for dinner and to sleep.  This will help because when his counts are ok, he will be able to see the kids.   All in all he will not be feeling well so any encouragement will be appreciated!

Again, here is his address:

Jon Strebe
Canal Square Apartments
359 N. West Street
Apt. #282
Indianapolis, IN 46202

Friday, August 23, 2013

GODSTRONG


A couple of my friends came up with this idea for t-shirts for Jon and ran with it.  Duke is Jon's favorite team, hence the color:o)

Please NO pressure just thought it was something fun for Jon!

You can click on the link and buy a T-shirt for $15 and Jon will get $10 back to fund his Nike fetish. Haha. i'm TOTALLY kidding!  But really, if you buy one, please take a picture of yourself in it and send it to us!


SHIRTS FOR JON

Now I'm going to let Jon tell you all why he chose GODSTRONG!

Take it away, honey!

Well......obviously GODSTRONG is a play on the Cancer foundation created by Lance Armstrong, and partnered with Nike, LIVESTRONG.  Donna was reading excerpts from Armstong's book "Its Not About the Bike".  In it, Armstrong gives credit of his cure to himself, his will power, the medicine, the nurses, and the doctors.  Basically, everyone but God received credit.  I want everyone that sees this t-shirt to know that we are battling cancer, and will beat it by the grace of God.  I want people to know that God is working through the medicine, through the nurses, and through the doctors that He has provided for us.  It is only by the grace of God that I will be healed, bottom line.  Each person that wears this shirt will now have an obligation to tell others that Jesus is the Great Healer, and the Great I Am.  Thank you for joining us in this battle, and on this journey.


Thursday, August 22, 2013

HOME SWEET HOME!

We are back home!  We drove home immediately after Jon's treatment on Tuesday.  He did well until about 30 minutes before we got to our house.  He started shaking and shivering.  By the time we got home he was in sweat pants, sweatshirt, covered in a blanket with his fever rising even after taking advil.  Thank goodness I can text his PA.  She said it was most likely a reaction to the bleomycin, the chemo drug he received Tuesday.  She said it can cause chills and fever.  The ordeal lasted about 5 hours and then by 1030PM the fever was gone and Jon was eating spaghetti and meatballs.  It was a crazy experience.  Again, so glad I could reach the PA or we would probably would have headed to the ER.

Since Tuesday night Jon has been feeling good.  He is still weak and feels fatigue.  But he is eating normal and able to be up and participating in our crazy lives!  His goal is to be back to work Friday.

Please pray that Jon will gain some weight back before he starts his high dose in less than 2 weeks.  Pray also God will protect him from germs as he works and that he will continue to gain strength.

Again, thanks for joining us on the journey!

We are GODSTRONG!


This isn't the greatest picture but it shows all the kids--including my nieces--praying for Jon.  We lay hands on him every night and pray for him.  It is a precious time!

Saturday, August 17, 2013

Jon is better!

His fever has been normal since about 2pm today.  He is feeling a little better and has a tiny bit more energy.  He was also able to eat today!  And we both took naps today!!

We really appreciate your prayers and your encouragement!

Friday, August 16, 2013

Reality has set in

I am not going to sugarcoat this.  Life is tough.  These past few days have been tough physically and emotionally.   Reality of our lives for the next 3 months has definitely set in as Jon has faced obstacles with this last round of chemo.  We are still in Atlanta.

This new chemo drug that he got last week can cause severe constipation.  Well, it did!  By Thursday night he was in so much pain that we ended up taking him to the ER.  When we got there we realized he had a low grade fever.  Not good for a chemo patient that has almost no white counts.  The ER helped him with his constipation problem and sent him home.  When I talked to the PA Friday morning she wanted him to come in and get IV antibiotics and fluids.  He will also be on oral antibiotics for 7 days and will also get shots of neupogen every day to get his white counts back up.

In the meantime, yesterday I was trying to get housing situated.  God totally opened a door for us!  The housing situation has been difficult to say the least.  We need a large home, furnished, near the hospital, with a short lease.  O and did I mention it has to be pet free because of Luke's allergies.  We quickly realized all these things weren't going to happen.  So we were trying to figure out the best option and had some possibilities through friends of friends.  But yesterday I made a phone call to a company that I found out about through the IU Cancer Center that rents out furnished apartments.  At the beginning Jon and I were opposed to apartment living with small kids because it would not give them enough space, no yard, etc.  Now we are all about it!  It is very difficult to find a 3 bedroom apartment downtown and impossible to find a 4 bedroom.  So we are going to rent 2 furnished 2-bedroom/2 bath apartments.  They are in the same building a floor apart.  The one that Luke will stay in has been remodeled, new carpet, etc.  The family living there now does not have a pet and the girl in charge of renting these assured me she would have it cleaned well!  It is less than a mile from the hospital.  Kids will stay in one apartment and Jon in the other!  This week has been tough.  Jon LOVES seeing the kids and they always bring a smile to his face.  But he HATES hearing them fight, yell, whine, cry and scream.  You probably get the picture.  This will give the kids an opportunity to ride the elevator and go see their daddy in a good mood and return to their own apartment to whine, scream and cry!  We quickly realized this week that the hospital will be a place we will frequent often even in the middle of the night so being right next to it will be a HUGE blessing.  We can make apartment living work for 2-3 months!

We are also going to take advantage of "city" life.  We live in a small town so we do not have opportunities that a big city offers (but we do have the beach, golf and pool year round!!).  I have enrolled the kids in kindermusik, gymboree sports class, we will do CBS, the zoo is within walking distance, the children's museum is the biggest in the world, etc.  The kids will have an activity everyday to get them out and about.

Jon will start out outpatient.  Which means, he will go to the hospital every morning around 8am.  He will be there until 3 or 4 getting chemo, fluids, meds, transfusions, etc.  He will return to the apartment for dinner and to sleep.  If he has any "issues" they will admit him to the hospital.  I will be with him most days.  Another blessing is that we have a full time live in nanny from Hilton Head that is going with us.  She will be with the kids everyday along with either my mother, Jon's parents or Jon's sister.  They are all rotating.  And then on the days I am with the kids a family member will be with Jon.  It should be interesting to say the least but we will make it work and help Jon through this time.

Please pray for Jon.  He is very sleep deprived.  He is very weak.  He has lost 10 lbs since he started this round almost 2 weeks ago.   He has been nauseated today.  He needs nutrients.  His body has virtually no immune system.  His fever has gone up to 102 today.  Currently as I am typing this we have it down to normal!  Praise God.  Please pray it will stay 100 or below.  Otherwise he will be in the ER again.  Pray that along with the antibiotics, his body will be able to fight this infection.  We are finding out quickly this is very different than 1st line chemotherapy.  When he went through this the first time, he gained 10 lbs, his counts never got as low as this time,  his doctor told him he was text book perfect. This is extremely difficult for Jon mentally and physically.  Jon is not a lay around person.  He has tons of energy and is on the move all the time.  It is very difficult mentally to try and fight through every day.  He is miserable!  Physically he already feels his body being depleted.  He wants so badly to be at home but the doctors have suggested we stay here because we need to be near the hospital.  He will get another dose of chemotherapy on Tuesday and we will figure out if we can go home.  Lots to pray about.  Thanks for being prayer warriors on our behalf.

I will leave you with some pictures.

When I got home from the hospital this morning at 1am, this is how i found Luke sleeping, hugging his little Clifford.  It made me smile!  I miss my children intensely right now.  I absolutely know I am doing the right thing by taking care of Jon, but I miss being with them during the day and even sometimes at night when I am not around.  


SSSHHH!!!  Don't tell Jon I posted this picture.  This was us at the Piedmont ER.  They had pretty purple masks.  


This was us at Gwinnett Medical where we originally went.  When they were checking Jon in and checked his vitals, we realized he had a fever.  I kinda freaked out because I knew they would admit him, starting crying and explaining to the nurse his situation.  I told him his doctor was at Piedmont.  He looked at Jon and said do you feel like driving 40 minutes to Piedmont?  Jon told him he did (LIAR, haha) and the nurse told us we needed to go to Piedmont where his doctor was.  I signed papers refusing service and we left!  It was definitely the right decision.  At the moment though Jon was not real thrilled!



This was a rainbow we saw driving in to Piedmont one day.  I could literally see the whole rainbow.  It was gorgeous.  I was reminded of God's promises.  He stays true to His Word always!  He keeps his promises.  During this journey, I love to be reminded of God's promises!